Off to South Dakota

WOW

The amazing researchers at Weimer Lab at Sanford Research were kind enough to give us a personal tour of their lab! I was able to share Isla’s story with everyone and personally thank them on behalf of everyone who loves our Isla girl for all of their amazing work.

This group of extra special humans work tirelessly and with great passion to make breakthroughs to get us one step closer to curing Batten Disease. The amount of gratitude I have for each and every researcher here is truly astronomical! This trip has been phenomenal and I have met so many important people who are working to change the future for Batten children.

Thank you to everyone at Weimer Lab, Dr David Pearce, BDSRA, Ben Forred, Sanford CoRDS (just to name a few rockstars from today)

The future of our Batten kids is bright my friends, I know it in my heart. Days like today just remind me that we are in very good hands and exciting things are in store

#NoBadDays

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Isla is Ready for 3rd Grade!

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Woodcrest Track Day 2022